A Transplant Story
Tweet ThisA young man in our parish - and family friend - recently wrote an essay for a contest about a transplant he underwent at a brave young age. The essay won him a trip to this winter's Rose Bowl Parade (riding on a float in the parade). We're tons of excited for him and his mom.
Mom gave me life - twice. How many people can say that?? I can! I'm 13 years old and 6 years ago, my mom gave me one of her kidneys so that I could feel what living really is!!! I was born with one kidney that didn't work at all and one that was small and not working enough to survive without dialysis. I was 4 days old when I had my first peritoneal dialysis catheter placed through surgery. I don't remember it - or the stuff my mom went through after that. My first memory of being sick was that my mom bought me a TV for my room. I was about 3 and I remember thinking it was SO COOL to have a TV in my room!!! But it was there for a reason - I was on dialysis 12 hours a day! As I got older, those 12 hours of dialysis was like a prison sentence to me. Other kids were spending the night with their friends (MY friends!), going to water parks, and playing lots of sports. Dialysis was a part of my life and I needed it to live, but it was more like just surviving. How do you really live when you're connected to a machine so many hours a day?
As I got older, my mom started talking about "the transplant." I don't think I really understood what that meant. I was only 6 years old when mom and my doctors started getting me ready. I remember mom being really scared. She didn't think I knew that she was scared, but I know she was. She had never had any type of surgery before. I had so many surgeries I couldn't count them all. This was just one more, right? WRONG!! I didn't know that this surgery would give me a life I never knew about!!! Mom was in a hospital next to mine because I was in one just for kids. I remember waking up after the surgery and asking to see her. Neither one of us felt very good, but we needed to see each other! I couldn't believe it when they showed me where they put mom's kidney and that it was WORKING!! It was the first time I remember NOT being on dialysis!! I was 7 and starting a NEW LIFE.
As I got better, I found a WHOLE NEW WORLD!! I get to go to NIGHTTIME baseball games, swimming parties and to friends' homes to spend the night! I play sports!! I get to see sunsets IN PERSON instead of on TV or through my window. And I got to go to Disney World without any tubes or dialysis, and without being so tired and sick! We went to Disney 3 months after my transplant to celebrate my life - my NEW life!!! Now I'm a Passion Panel member with Mid-America Transplant Services because I want EVERYONE to know how important transplants are!! I'm LIVING proof - and I'm LOVING life!! Thanks Mom!!!
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September 4th, 2009 - 11:06
Michael,
I have been away for a couple of days and not able to read the blog. It was a suprise to me, that I found this post when I returned.
I wanted to let you know that this story hit very close to home for me.
The life of a transplant patient and their family (pre and post op) is a very emotional one. I know.
My son, Othello, underwent a 5 organ transplant at the age of 9 months. Over the course of his 2 years with me, he went through more than 2 dozen surgeries, 10-20 meds a day, counteless hospital stays, and more.
I found that when facing a life altering decision (like transplantation / organ donation) one cannot do it alone.
Please, feel free to wander over to my website http://www.othellosmithfoundation.tk . You can read there the updates, entries, links, etc. I maintained this blog throughout his life, and after to help others like Othello and myself.
Thank you Michael, for posting his story. I hope it inspires others…
Jennifer (Nash)
PS Thanks for the Starbucks card.