Halbrook.net
2Sep/091

A Transplant Story

A young man in our parish - and family friend - recently wrote an essay for a contest about a transplant he underwent at a brave young age. The essay won him a trip to this winter's Rose Bowl Parade (riding on a float in the parade). We're tons of excited for him and his mom.

But the essay also got us (Suzanne and me) talking and thinking about the important things, like sacrifice, and priorities, and prayer, and thanksgiving. So I asked for permission to share his essay here with you. With his mother's permission, here is:
My Transplant Story

Mom gave me life - twice.  How many people can say that??  I can!  I'm 13 years old and 6 years ago, my mom gave me one of her kidneys so that I could feel what living really is!!!  I was born with one kidney that didn't work at all and one that was small and not working enough to survive without dialysis.  I was 4 days old when I had my first peritoneal dialysis catheter placed through surgery.  I don't remember it - or the stuff my mom went through after that.  My first memory of being sick was that my mom bought me a TV for my room.  I was about 3 and I remember thinking it was SO COOL to have a TV in my room!!!  But it was there for a reason - I was on dialysis 12 hours a day!  As I got older, those 12 hours of dialysis was like a prison sentence to me.  Other kids were spending the night with their friends (MY friends!), going to water parks, and playing lots of sports.  Dialysis was a part of my life and I needed it to live, but it was more like just surviving.  How do you really live when you're connected to a machine so many hours a day?

As I got older, my mom started talking about "the transplant."  I don't think I really understood what that meant.  I was only 6 years old when mom and my doctors started getting me ready.  I remember mom being really scared.  She didn't think I knew that she was scared, but I know she was.  She had never had any type of surgery before.  I had so many surgeries I couldn't count them all.  This was just one more, right?  WRONG!!  I didn't know that this surgery would give me a life I never knew about!!!  Mom was in a hospital next to mine because I was in one just for kids.  I remember waking up after the surgery and asking to see her.  Neither one of us felt very good, but we needed to see each other!  I couldn't believe it when they showed me where they put mom's kidney and that it was WORKING!!  It was the first time I remember NOT being on dialysis!!  I was 7 and starting a NEW LIFE.

As I got better, I found a WHOLE NEW WORLD!!  I get to go to NIGHTTIME baseball games, swimming parties and to friends' homes to spend the night! I play sports!! I get to see sunsets IN PERSON instead of on TV or through my window.  And I got to go to Disney World without any tubes or dialysis, and without being so tired and sick!  We went to Disney 3 months after my transplant to celebrate my life - my NEW life!!!  Now I'm a Passion Panel member with Mid-America Transplant Services because I want EVERYONE to know how important transplants are!!  I'm LIVING proof - and I'm LOVING life!!  Thanks Mom!!!

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About Michael

Michael loves his God, wife, 3 sons, family & friends, reading, music, & his garden. He's a music director at Holy Family Catholic Church. By day, he is a Sr. Consultant at Omniture, an Adobe company.
Comments (1) Trackbacks (0)
  1. Michael,
    I have been away for a couple of days and not able to read the blog. It was a suprise to me, that I found this post when I returned.
    I wanted to let you know that this story hit very close to home for me.
    The life of a transplant patient and their family (pre and post op) is a very emotional one. I know.
    My son, Othello, underwent a 5 organ transplant at the age of 9 months. Over the course of his 2 years with me, he went through more than 2 dozen surgeries, 10-20 meds a day, counteless hospital stays, and more.
    I found that when facing a life altering decision (like transplantation / organ donation) one cannot do it alone.
    Please, feel free to wander over to my website http://www.othellosmithfoundation.tk . You can read there the updates, entries, links, etc. I maintained this blog throughout his life, and after to help others like Othello and myself.
    Thank you Michael, for posting his story. I hope it inspires others…
    Jennifer (Nash)
    PS Thanks for the Starbucks card.


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